Chronic illness and fatigue

If you suffer with chronic illness , you’ll know that owning an alarm clock is a waste of money . You’ll hear it going off , but it doesn’t necessarily mean you’ll wake up . 

You’ll also be very familiar with the snide remarks / “jokes” people make .

“I wish I had time to take a nap” .

“Everyone gets tired , you just have to push through it” .

Having chronic illnesses almost always means you don’t have a good , if any , sleep pattern . 

The usual 8 hours sleep everyone gets seems like heaven and you always hope that one day , you will get that glorious , golden 8 hours , of uninterrupted sleep for yourself . 

The thing is , no one truly understands it until they go through it themselves . I didn’t .  I’m 28 and 11 years ago I was your ‘normal’ , every day person who could get up and go . Party all night and work all day . Get a few hours sleep and I was raring to go again ! I never understood how people could be so slow or always sleeping or never go out . I loved life and nothing could hold me back . 

Then , I had my accident and life spiralled . I then started to understand why people couldn’t do things .

Normal everyday life is a chore . 

For me , I suffer with broken discs in my lower spine , hip and knee problems . (Along with so much more) . So from the minute I get up , I’m struggling . 

Getting dressed used to take minutes , now it’s 30 minutes or more . 

Bending , hurts . 

Getting up , hurts . 

Sitting down , hurts . 

I feel like I’m stuck in a 90 year olds body . 

The struggle is real – as they say . 

By the time I get downstairs I’m ready to go back to bed .

Making coffee is a chore but it’s so needed . Caffeine is about the only thing my body runs on these days . 

My normal routine …. I say routine , it’s more than likely that I …. Get up around 11am . Dressed and downstairs by 12pm . I have coffee by 12:15pm and then I sit down . I’ll try and get stuff done but every 15 minutes I need to sit . 

Come 5:30pm I . Am . Dropping . I normally go for a nap for a minimum of an hour and a half . It takes me between 30 and 45 minutes to settle and drop off . Then I’ll be waking up every 20 – 30 minutes . It takes around 10 minutes for me to drop back off to sleep . So I never get a full rest . This is why I can’t ‘power nap’ .

Then after my nap I’m normally awake until 4/5 am . I’ll sleep until 8am , waking every 20 – 30 minutes . Then I’ll be awake for an hour (8-9am) Then I usually nod off again until 11am . Always waking every 20-30 minutes . This is if I’m lucky to get sleep . Some nights , I’m awake all night . It all depends on the pain and if I can lie down etc . 

And I know I’m not the only one who suffers like this . My father is exactly the same as me . So I know I’m not alone when I say , it really is tough . 

So to have the usual sly remarks made , it’s no surprise when people get short with you .  

When you are basically called lazy . Oh how I wish it was true . Physical and mental exhaustion is no joke . 

Or when you’re told it’s just a bad day . Or you’ll get over it …. Please , show us how ? Teach us how chronic pain can be cured with a flick of a switch . 

And when people make fun of you . Now this is where people can get really petty . When they see you struggling and just think it’s hilarious and that you’re doing it for attention . I would absolutely love to watch you walk in our shoes for just one day . 

So please , be kind people . It takes zero effort to just be nice to someone . To try and understand it . I mean , you wouldn’t like someone to make a joke about your bad day would you ? So why would you do it to others ? 

Think before you judge . 

Chronic illness is tough . I have tried a lot of medication to help me , none of which have . It can take years to find the right thing , so far for me it’s taken 10 years , and I’m still trying . 

I’m now looking into natural pain relief and foods that help . 

My second side

I realise through my blogs I have taken everyone through my mental illness with me but yet haven’t let any of you into my life .
There is more to me than just illness .

Where do I start ?

I’m 27 years young and I live in a small town in South West Wales, UK. 

My parents are happily married with over 40 years together .

I have 2 older brothers .

I have had 2 labradors over the past 20 years . Tess was my first , a golden lab. And Ellie my second, a black lab.
I have had 2 rabbits, Sooty and Flopsey.
A hamster , Yoda (Yoda was a girl haha)
And a budgie named Ben .

I adore animals !!

I used to work , from the age of 16 until I was 22 .

I studied Performing Arts for a year. 
Then went on to study Theatre Lighting for 3 years .
I also went to University and studied Theatre Design & Production but I didn’t finish my first year . (Illness)

Films are a passion of mine .

My hobbies are :

📚 Reading
📒 Writing books
✏ Art – Sketching & Painting
🎮 Gaming – Pc , PS4 , Xbox & Nintendo
🎀 Collect models / figures
🃏 Collect Pokémon cards

As I don’t work , I stay at home a lot . I very very rarely leave the house . So I have a lot of hobbies , along side blogging , to keep me entertained .
Although, I don’t get to do these daily .

I have 2 wonderful Nieces who I love spending time with, and my little cousin who lives with them . 

I basically live a very simple life .
I have a wonderful Fiancé who has supported me for over 6 years and honestly , I don’t know where I would be without him .

That’s basically me .
I don’t talk a lot about myself because I’m not that interesting haha .
But I thought I would give you a little info about me 🙂
I am more than my illnesses and I just wanted to point that out .
My whole point to blogging is to help end the stigma against Mental health . To do this people also need to know there are 2 sides to everyone.  The person & the illness .
We don’t choose this life,  Mental health is not a choice .
I wish it was .

image

Cutting ties & moving forward.

Happy New Year everyone 🙂
I hope 2016 treats you well .

image

I wanted to write this blog as it’s something I’ve been thinking about for a while .
I went through a lot in 2015 . The ups and the major downs.  It was a long roller coaster ride of emotions .
But one thing that has taken a while to click with me, is the loss of friends .

We all go through life meeting new people. We all lose someone in some way shape or form , but I’m not on about the ‘normal’ loss of friends through losing contact or just life getting in the way.  I’m on about losing someone who you considered to be a friend .
The fake friend.
Someone who you put your life on hold for , to meet up with.
Someone who you threw your problems aside for and tried to help them when they were at breaking point .
(But who wouldn’t do this for you .)

And then when their life starts to pick back up, they kick you to the curb .

It feels awful .
The feeling of being used .
No one deserves that .
I don’t understand how people can put someone through it .

Oh my life is hell , they’ll understand

– When you become good enough for them. –

Now my life is back on track, I don’t need that ‘negative’ friend who has helped me through it all, I’ll just kick them to the curb and move on with my life” .

– The part where they become too good for you and you become the negative one . Because they are on the slight “up” that life has given them . –

I’ve been thinking about it a lot . As I do over think things, that’s the whole thing about anxiety .
As much as it magnifies every emotion , it can , every once in a while , make you see things clearly .

I gave my time .
I gave up hours of my days .
I would drop everything for this friend .
I would push my problems aside and I would listen to them go on and on about theirs .
They would cry,  get angry and really vent .
They needed someone and I was willing to be that someone .
To be the shoulder .
I truly believed that they wanted to be friends .
That they were a nice person .
When really , they just saw me for the soft person that I am .
For the person who will do anything to see others happy .

As soon as I had done my work . They got their life back on track , for now. They have a job again , and I feel like they now think they’re better than me. 

I had tried to make contact with this person . But there was always some excuse .
I asked them if everything was ok between us .

They lied .

I then saw them when out and about and they ignored me but acknowledged my friend .

Then in passing conversation between said friends , they dropped the news in about a job .

And it all clicked .

Whilst they think they’re being clever . They’re actually showing their true self .

I was good enough when no one else would listen to them , but the minute they get a part of their life back , boom . I’m not good enough .

They only got their idea of said job , from me . Which is what I find amusing .

I’m better than her now , because I have the job she said would be perfect for me and pointed me in the right direction

But instead of a thank you , I just get tossed aside .

The best part to it all ?

They don’t realise that with depression , it’ll always come back .

The paranoir , the sleepless nights , Panic attacks , feeling ill , feeling unwanted , unloved . Etc .
It isn’t a once in a life time thing that just goes over night . Depression is always there . It just hides until you let your guard down , and then it jumps right back on .

image

2015 taught me a lot of hard lessons . The main one is having to let go .

So this blog , is me letting go .
It’s the final goodbye to a toxic relationship .
I may be unfit to work because of health issues , but that doesn’t give anyone the right to treat me like an underdog .
It doesn’t make you a better person because you can get up pain free every day . It doesn’t change who you are .
And nothing gives you the right to treat someone this way .

I know I’m not the only one who has gone through this .
So my advice to you is , cut them off .
Don’t let them get to you. 
They used you and yes it sucks .
They took your nice nature and used it to their advantage .
But that doesn’t make you a bad person , it makes them the bad person .
So instead of just dwelling on it , say your final goodbye , in what ever way you feel appropriate,  and cut all ties .

image

I feel good after venting all of this 🙂
Now I can move on to the next chapter of my life .
I hope you can too 🙂

My Spiritual Experiences

Friday night is open circle night at the Spiritual Centre in Llanelli. Which I attended for the first time last Friday.
It was an amazing experience 😀

I was very nervous about going so I went with my Aunty.
We went out for a lovely meal before heading to the centre.
Both of us had no idea what to expect but we were looking forward to learning about it.

When we entered it was pretty empty. We were greeted by the main Medium and told that they wouldn’t freak us out. He explained a little bit about the circle and then let us mingle with the others.

In total there were about 50 people. We ended up having to put more chairs out into the circle.

We all sat in a circle with 5 mediums all around the room.
Most of us had readings, but sadly no one came through to us this time.
However, we met some lovely people. It was so peaceful there and we thoroughly enjoyed ourselves.

I came home feeling calm and warm. Like a huge weight had been lifted off my shoulders, even though I didn’t get a reading this time around.

The messages that did come through for others were lovely. They were all warm and loving and it made me happy to see others happy J

I highly recommend this experience to anyone who is open to it.

Last Tuesday, (Yesterday) I also attended an evening in the spiritual centre with my friend. A medium from another centre came in as a guest. She gave out messages to nearly the whole room.
She was very, very good!!

My friend had a message come through and towards the end there was a little message from my Nan too. Only to say she is around and she is sending love.
But it was lovely to hear it and it was lovely to hear my friend get a message too.

Yet again, I left feeling calm and warm.
It was an amazing experience!!

I will be attending again this Friday and the following Tuesday. I’m hoping to make this a regular thing.

The feeling when I leave the centre is truly amazing. It’s rare I ever feel calm and relaxed.
I am also very tempted to attend the Monday sessions for Spiritual Healing.
If anyone has experienced this themselves, please feel free to let me know any information about it J

I am quite excited for the next meetings.
Obviously, I will blog about them J

I have to apologise for the wait with this blog too.
I know a few of you have been asking when it will be up.
I really wanted to post about it last Monday. However, my Internet has been playing up so I have had to wait until it peaks a little before I can post anything.
I am hoping to get it sorted this week!!
Here’s hoping!!