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M-I-A

Apologies , these last few months I’ve been MIA .

A lot has happened . 

Starting off I’ve developed a food allergy again . I’m now extremely allergic to milk . Which is a bit of a pain as most foods contain milk . 

I’ve been veggie since I was 13 , so I’ve now had to go vegan . Not that I have anything against the vegan diet , it’s just difficult when you don’t know much about it and have no choice but to take it up . 

I was however a fake vegan , as I wasn’t fussy if food had egg in it . Until the last few weeks where I now also have an allergy to egg ! 

There is a plus side of this diet . As I mentioned in previous blogs , I was on all natural medications . I didn’t take the steroids my gastro gave me and researched natural alternatives instead . I was on cumin and CBD oil . 

I saw my gastro a few weeks ago and he can’t believe it . I’m in remission !! Although he was concerned about the “flare ups” . Until I mentioned my milk allergy . 

My gp has been refusing to send me for allergy tests and just said to eliminate the foods . However , as it’s so severe it can become life threatening , so my gastro has now demanded an allergy test be done . I’m still waiting for that . 

I’ve also lost 1 stone 4lbs in 3 months , without even trying to . This hasn’t happened in 8 years !! 

On top of it all , earlier this month I lost my Uncle . My Aunty found him dead in bed . He was fit and healthy as far as we all knew . Turns out all the arteries to the heart were clogged and he basically walked upstairs after having breakfast , sat down on the bed and died instantly . 

It’s been hell in all honesty . 

We are all taking it in turns to stay with my Aunty as she’s not well herself . 

We are also all still , very much in shock . 

My father more so as he was the first one there to do CPR . My Uncle was his best friend . He worked for about 20 mins before the first responders came , then took it in turns with them to keep going . He even still kept trying once the paramedics got there . So you can imagine what he must be going through 😦 

I did go to see my Uncle in the chapel of rest . First time I’ve ever seen someone like that . But it was peaceful . He looked like he was going to wake up any second , do his usual snort like he did so often in his chair , and go “Uhh I wasn’t sleeping” . If only 🖤

There is something that made us all a little happier , if you can be happy at all in this situation . Before he passed , he had the grandchildren down from London for a week . It was a trial to see if they would stay with them for a while so they could have little holidays in Wales . The grandchildren adored my Aunty and Uncle . 

Then the weekend before he passed , he had my Nieces and Nephew over for a party for my Aunty , she had recently turned 60 but they couldn’t make her original party so they held one just for them . Myself and family went too . It was fab ! My Uncle made sure they were full on good food and then spoiled them rotten , as he always did with children , cake and Ice cream with the chocolate mint wafers . YUM ! And not forgetting the crisps and pop ! 

My Uncle was a sucker when it came to kids . They seemed to bring out the child in him 🙂 He did the same for me when I was a kid too . 

So basically , we figured out , he had his goodbyes . Everything had fallen into place . It’s something we can take some comfort in . 

His funeral was a lovely send off . The church was full . People had so much to say about him , all good . My Aunty wanted to celebrate his life and that’s exactly what we did . 

The song she chose to play him out in the church was from Dirty Dancing . The Time Of My Life . 

https://youtu.be/WpmILPAcRQo

Because my Uncle loved to dance ! 

I’ll never forget him grabbing me at my engagement party and making me dance . I can’t dance at all so he put me on his feet , like you do with a child , and made me dance with him for a while . I only got up to go to the bar , and I ended up dancing at my party . But that’s the kind of man he was . He was a loving , fun , gentle man . You could always rely on him and nothing was ever too big . He’s helped me out so many times over the years , I can’t thank him enough for everything he has done . 

I’ve had a few tears , but not enough . I feel like I really need to cry and scream and blame someone . But I can’t .  I think it’s shock . Even writing this , I’m crying a bit but no where near as much as I need to . I just cannot believe I won’t be seeing him in this life again . It’s heart breaking . 

It’s safe to say , this world has lost a fantastic man , and life will never be the same again . 

I truly hate September .  Last year I lost 2 close friends and now this year my Uncle . 

These last 7 years have been hell for my family , and I’m sick and tired of life always taking from us . 

Next year , I’m 30 . I’m not sitting back waiting for something else to happen , I’m grabbing 2018 by the balls and I’m living . Because one this I have learnt the hard way is , life is cruel and it’s selfish . It takes and takes and will drain you of everything if you let it . It’s taken enough from me now , it’s my turn to take something back . 

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Ulcerative Colitis and Weight Gain .

I have to state I am not a Doctor of any kind , but this is a recent subject I have found myself researching after a recent experience with a Gastro . 

It wasn’t a pleasant one .

To cut a long story short , I was told that I was obese (like I didn’t know) . But to add insult to injury , I was also told I shouldn’t be obese as “Ulcerative Colitis makes you lose weight , not put it on” .

Now I’ve struggled with my weight for the last 8 years , since being diagnosed with UC . I’ve been on liquid diets , teatox , raw vegan diets , you name it , I’ve done it . Including the gym 5 days a week for 2-3 hours a day ! I can lose a stone , but nothing more .

I explained all of this to the Gastro . He laughed . Told me to get running . So I went through all of my health issues and what the Neuro has advised me to do . He didn’t know what to say . Except that I need to stop over eating . 

That part got to me big style ! I eat a max of 800 calories a day . I always have because I can’t stomach anything more .

Needless to say he didn’t believe me and told me I need to be on 500 calories a day to see any benefit . The cheek of it ! 

So I’ve gone into , let’s say a stubborn mood since . 

As I am seeing him again on the 13th I want proof of what I consume etc a day . So I’m keeping a log of my caffeine , water and food intake . Along with my steps , sleep pattern , heart rate , blood pressure and glucose levels . 

I have also done some research . It took me a while to find it via Google so I decided to take a better approach . 

Like many sufferers , I join groups and forums . So instead of reading I asked the question directly and went on to explain my experience .  

So many people came forward with their experience with weight gain and UC . 

The way my gastro had explained it to me , it made me think I was the only obese person with UC ! But I’m not . 

Over the years I have been on numerous medications . I have also been on steroids . All of which have made myself and countless others gain weight . 

As you know , gaining weight is easy , the hard part is losing it . People of all ages have answered my question and they are all struggling with the same thing . 

Whilst UC does make you lose weight , the medications make you gain and gain . I stopped mine over a year ago and went natural . I now refuse to put any toxins / chemicals in my body . Although I can’t lose the weight …. yet , I am hopeful that I will . It does take time for the body to reset itself and start getting it’s rhythm back , I’m just hoping that’s soon so I can prove this ass of a doctor wrong !


I thought I would share this experience with you as I found it difficult to come across what I needed . I hope this helps a little for anyone in the same dilemma as me . 

If you want more information or just need to chat to another UC sufferer , please feel free to leave comments below .