If you suffer with chronic illness , you’ll know that owning an alarm clock is a waste of money . You’ll hear it going off , but it doesn’t necessarily mean you’ll wake up .
You’ll also be very familiar with the snide remarks / “jokes” people make .
“I wish I had time to take a nap” .
“Everyone gets tired , you just have to push through it” .
Having chronic illnesses almost always means you don’t have a good , if any , sleep pattern .
The usual 8 hours sleep everyone gets seems like heaven and you always hope that one day , you will get that glorious , golden 8 hours , of uninterrupted sleep for yourself .
The thing is , no one truly understands it until they go through it themselves . I didn’t . I’m 28 and 11 years ago I was your ‘normal’ , every day person who could get up and go . Party all night and work all day . Get a few hours sleep and I was raring to go again ! I never understood how people could be so slow or always sleeping or never go out . I loved life and nothing could hold me back .
Then , I had my accident and life spiralled . I then started to understand why people couldn’t do things .
Normal everyday life is a chore .
For me , I suffer with broken discs in my lower spine , hip and knee problems . (Along with so much more) . So from the minute I get up , I’m struggling .
Getting dressed used to take minutes , now it’s 30 minutes or more .
Bending , hurts .
Getting up , hurts .
Sitting down , hurts .
I feel like I’m stuck in a 90 year olds body .
The struggle is real – as they say .
By the time I get downstairs I’m ready to go back to bed .
Making coffee is a chore but it’s so needed . Caffeine is about the only thing my body runs on these days .
My normal routine …. I say routine , it’s more than likely that I …. Get up around 11am . Dressed and downstairs by 12pm . I have coffee by 12:15pm and then I sit down . I’ll try and get stuff done but every 15 minutes I need to sit .
Come 5:30pm I . Am . Dropping . I normally go for a nap for a minimum of an hour and a half . It takes me between 30 and 45 minutes to settle and drop off . Then I’ll be waking up every 20 – 30 minutes . It takes around 10 minutes for me to drop back off to sleep . So I never get a full rest . This is why I can’t ‘power nap’ .
Then after my nap I’m normally awake until 4/5 am . I’ll sleep until 8am , waking every 20 – 30 minutes . Then I’ll be awake for an hour (8-9am) Then I usually nod off again until 11am . Always waking every 20-30 minutes . This is if I’m lucky to get sleep . Some nights , I’m awake all night . It all depends on the pain and if I can lie down etc .
And I know I’m not the only one who suffers like this . My father is exactly the same as me . So I know I’m not alone when I say , it really is tough .
So to have the usual sly remarks made , it’s no surprise when people get short with you .
When you are basically called lazy . Oh how I wish it was true . Physical and mental exhaustion is no joke .
Or when you’re told it’s just a bad day . Or you’ll get over it …. Please , show us how ? Teach us how chronic pain can be cured with a flick of a switch .
And when people make fun of you . Now this is where people can get really petty . When they see you struggling and just think it’s hilarious and that you’re doing it for attention . I would absolutely love to watch you walk in our shoes for just one day .
So please , be kind people . It takes zero effort to just be nice to someone . To try and understand it . I mean , you wouldn’t like someone to make a joke about your bad day would you ? So why would you do it to others ?
Think before you judge .
Chronic illness is tough . I have tried a lot of medication to help me , none of which have . It can take years to find the right thing , so far for me it’s taken 10 years , and I’m still trying .
I’m now looking into natural pain relief and foods that help .