Ulcerative Colitis and Weight Gain .

I have to state I am not a Doctor of any kind , but this is a recent subject I have found myself researching after a recent experience with a Gastro . 

It wasn’t a pleasant one .

To cut a long story short , I was told that I was obese (like I didn’t know) . But to add insult to injury , I was also told I shouldn’t be obese as “Ulcerative Colitis makes you lose weight , not put it on” .

Now I’ve struggled with my weight for the last 8 years , since being diagnosed with UC . I’ve been on liquid diets , teatox , raw vegan diets , you name it , I’ve done it . Including the gym 5 days a week for 2-3 hours a day ! I can lose a stone , but nothing more .

I explained all of this to the Gastro . He laughed . Told me to get running . So I went through all of my health issues and what the Neuro has advised me to do . He didn’t know what to say . Except that I need to stop over eating . 

That part got to me big style ! I eat a max of 800 calories a day . I always have because I can’t stomach anything more .

Needless to say he didn’t believe me and told me I need to be on 500 calories a day to see any benefit . The cheek of it ! 

So I’ve gone into , let’s say a stubborn mood since . 

As I am seeing him again on the 13th I want proof of what I consume etc a day . So I’m keeping a log of my caffeine , water and food intake . Along with my steps , sleep pattern , heart rate , blood pressure and glucose levels . 

I have also done some research . It took me a while to find it via Google so I decided to take a better approach . 

Like many sufferers , I join groups and forums . So instead of reading I asked the question directly and went on to explain my experience .  

So many people came forward with their experience with weight gain and UC . 

The way my gastro had explained it to me , it made me think I was the only obese person with UC ! But I’m not . 

Over the years I have been on numerous medications . I have also been on steroids . All of which have made myself and countless others gain weight . 

As you know , gaining weight is easy , the hard part is losing it . People of all ages have answered my question and they are all struggling with the same thing . 

Whilst UC does make you lose weight , the medications make you gain and gain . I stopped mine over a year ago and went natural . I now refuse to put any toxins / chemicals in my body . Although I can’t lose the weight …. yet , I am hopeful that I will . It does take time for the body to reset itself and start getting it’s rhythm back , I’m just hoping that’s soon so I can prove this ass of a doctor wrong !


I thought I would share this experience with you as I found it difficult to come across what I needed . I hope this helps a little for anyone in the same dilemma as me . 

If you want more information or just need to chat to another UC sufferer , please feel free to leave comments below .

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I had a plan.

At age 16 all I wanted to do was act . 

I adored theatre and being on stage . I had been acting for over 10 years and had lead roles in everything . 

All the way through school I was an A* student at acting and script writing .

So when I went to college , it was to no surprise that I chose Performing arts . However , whilst on the course , I realised I had a passion for another side of it . I fell in love with theatre lighting, sound and set design . 

I finished my course after a year with a distinction* (highest grade) and then decided to go back and join the theatre lighting and design course . 

I thrived . It became my way of life . 

Although I was battling with my UC . My lecturer worked around it . He was so understanding and sent work home for me on days I couldn’t make it in . Then when I went in I did the practical side . 

I passed the course again , after 2 years , with the highest grade possible . I got extra grades too because I finished the work early . So I also got a qualification in PAT testing the lights and health and safety . 

It was amazing . Exactly what I wanted to do . 

I took a little break from studying and went to work in retail until I figured out if I wanted to go on to university or straight into the theatre lighting world .

I decided university would be amazing as I could stretch out into other fields too . 

But that’s when my body started giving up on me .

I had an accident whilst doing performing arts which has lead to me having broken discs in my lower spine . I have hip and knee problems too . I had to quit Uni 3 weeks before finishing the year . I was absolutely gutted . But I couldn’t cope with the pain and no sleep . 

I thought it would be a temporary thing . That I could go back and redo the year . But my body is failing me . 

I feel lost . 

I had my whole life career planned out . I knew exactly what I wanted . I set things in motion to get it . But that one slip in the dance studio has destroyed my dreams . 

The pain is getting worse . There’s no sign of pain clinic , physio or hydro therapy . 

I’ve seen physio once in the surgery just to try and get the ball rolling but the positions they have given me just hurt . 

I’m not sleeping for more than 4 hours a night and it’s a broken sleep . 

I’m constantly worried about my future . 

Being 28 and needing a walking stick with a seat on just to go places , is not how I planned for my life to turn out . 

My only interest has ever been theatre . I don’t find any happiness in anything else . But the fast paced environment isn’t for me anymore .

I really am stuck . 

I can’t work 9-5 because I don’t sleep well , so I drop when I drop . 

I’m unreliable because of that . 

Everyday simple tasks are a challenge for me . And my memory is all kaput because of the lack of sleep and pain . I can’t be trusted to boil an egg without walking off from the stove . 

I really do wish life was different right now . If only I didn’t have that fall , I would be on the track to my dream job . But I guess life had a different idea for me . A different path ? 

I wish it was possible to see the future , because right now , I’m stuck battling with my pains and emotions and it’s not fun and games . 


I’m sorry for a depressing post . But I’ve always said I will post the pros and cons of my life . Today just so happens to be a bad one . But I know , it’s only a day πŸ™‚ 

The past 2 weeks .

A lot has happened the past 2 weeks . 

Back in December I was told I was in remission with my Ulcerative Colitis . Which was amazing news for me . Even though I was getting small fare ups , I could cope . 

After 8 years of suffering I thought I was finally getting somewhere . 

Until ….

Last week I saw a doctor at my surgery . He went through my notes . I went down about hip and knees pains . 

He told me I had nothing wrong with my spine . Even though neuro says I have broken and bulging discs . He said everyone does . He also said I have ibs but didn’t test for it . He gave me meds for that . Then asked if I take anti inflammatories . To which I said no because of my UC . He went on to say that I can now as I’m in remission . 

He then said he will give me pain killers for me knees and hips and see how we go . 

That was last Tuesday . 

Five days later I was in extreme pain . When I read up about the meds , I found they were NSAIDS (Non steroid anti inflammatory drugs) . 

I stopped them immediately and prayed the pain would go away . 

Come Monday I was rushed to A&E . In pain and bleeding , a lot . 

Turns out I was right . I am not allowed these meds and the doctor in no way should have prescribed them . Even when in remission . UC is a life long condition . It never goes away , just lies dormant for a while . 

Now I have been referred back to gastro . Awaiting further tests to see what damage it has caused . 

Speaking with a doctor in A&E she confirmed that it can progress into Crohns in circumstances like mine . The worst case scenario is also bowel cancer depending how bad everything is . It’s doubtful but can’t be ruled out until I see gastro . 

However , this means my anxiety is at an all time high again . Panic attacks are back due to stress . All because a doctor didn’t do his job right . 

I am fuming to say the least . 

I feel like it’s one step forward and twenty back . 

I have really been struggling with all of this . Mentally and physically . 

Thankfully I have my family to help me through it . Without them I wouldn’t be able to cope . 

They have all been my rocks πŸ’œπŸ’œ

Family is definitely everything in times like these . 

They have helped me keep going and also encouraged me to take up hobbies to take my mind off it all . 

Along with raising money for Many Tears Animal Rescue , I have also decided to try out making glitter glasses πŸ™‚ 

They’re a lot of fun on my good days πŸ™‚ Although , I have quite a few now haha .

They help me relax and are super easy to make too πŸ™‚ 

My aim this year is to save more money . So making gifts is the way forward . Something personal and made with love and something that keeps my mind active and not ticking over on the bad stuff . 

I highly recommend it to anyone who loves being creative . It’s a nice pass time . Along with spending time with loved ones πŸ™‚ 


Good riddance 2016

Thank God for that . 2016 is over . 

Not that I’m expecting 2017 to be my year or anything . But last year was filled with so much death . 

It started in June 2015 with my partners Gran and then my dog . And then 2016 hit and so many famous people started dropping . Over 80 celebrity deaths . Most being my idols , especially Carrie Fisher , that one really got to me at the end of the year . 

Not to mention my friends who passed away suddenly, both aged 28 .

I normally love Christmas and am like a massive child . But this year, it didn’t seem right . 

All my Dec’s went up . Time spent with family . Music , alcohol , cake etc . But I couldn’t help but feel this massive void . 2016 felt like it left me a shell . Emotionally, I had been so up and down that I think I was exhausted come the end . 

Don’t get me wrong , I appreciate all the amazing gifts and time spent with loved ones . I was truly spoiled again this year . I am just emotionally exhausted .

That’s one thing I can say though , I have slept through the holidays . Been going to bed super late and staying in bed to catch up on sleep too . 

I didn’t celebrate 2017 . I had tea in my pajamas and sat and watched TV with Rob all night . 

One thing I can say though . I am happy 2016 is over . I am ready to move forward from all of that rubbish . It didn’t make me stronger , it beat me black and blue . But it made me thankful for the time I have been on this earth and for the time I have left . Be it a day , year or seventy years . I am thankful . 

So with that said , thank you 2016 and goodbye . Please 2017 , do not be a copy cat ! 

The waiting game….

Had my colonoscopy on Monday . 

Ouch!!

I’m not going to lie , it was horrific . 

I had to have gas and air and pre med . I was still screaming in pain . It really really hurt . 

Naturally I am pale , but I came out of there looking like a ghost . I was white !! 

They couldn’t find a vein to put my canola in .  When they did it spurted everywhere .  Eventually my consultant got it in one go . 

I somehow convinced my consultant that I’m rich because we were all talking tattoos . He asked what I did for a living and I said nothing . To which he smiled and I didn’t correct him haha . It’s not a bad thing right ? It’s better than him thinking I’m a bum or something haha . 

I brought up about the laxatives though . They all agreed that something needs of be done about it . They have had loads of complaints !!

Back to the op . My Ulcerative Colitis wasn’t flared up which was good , but they found something they didn’t like so they’ve taken 10 biopsies and I should have the results in 1 to 2 weeks with a follow up app in 3 to 4 weeks .  I can phone to get the results before the app though , which is great . I hate waiting . 

The things they found could be anything though . From food intolerance to the major stuff I don’t want to think about . 

As I feel unwell daily it could be anything . Although , I do want tests done to see what I am allergic to as every time I eat my stomach hurts . It stretches and I have stretch marks because of it . So hopefully the results will confirm that and I can get referred for further tests and sort that out . Here’s hoping anyways . 
I hope I haven’t scared anyone with these blogs though . I have had 2 colonoscopies before this one and they didn’t hurt . They were uncomfortable but not painful . I don’t know what was different this time , but it was horrendous .  I highly recommend pain relief of all kinds haha . Although I did refuse the high end pain relief as I wanted to leave asap afterwards to see my friend who is in hospital .  I ended up missing the time slots though …. If I had known , I would have had all the pain relief going …. Not happy .  But I’m extremely glad I got it out of the way . 

Now all I have to do is get over the allergic reaction . lol . Yeah . My body has decided to be a jerk . We assume it’s a reaction to the meds . Although I am better tonight , I have been suffering with flu like symptoms . Shakes and feeling cold came first , then yesterday I was sneezing like crazy and my face was puffy , which only ever happens when I’m allergic to something . Today I’ve just felt like jelly . Wobbling all over the place . I’m also off food although I’m trying my best to eat . 

It really is worth it though πŸ™‚ At least in a few weeks I will know what is up with that area of my body and I can fix it . 

I will keep everyone updated .

Colonoscopy day .

They lied . Moviprep doesn’t last for 2 hours max . It used to …. But I have had just under an hours sleep and now I’m up to start drinking some more . I am dropping !!

I spoke to a friend who has been through it lately , she was up all night too with it . So it’s not just me . Be prepared if you’re going through it . 

It says after an hour of your stomach settling , you can take any prescribed meds . I took mine at 11pm thinking I would be fine . Turns out I wasted meds . 

I’ve had chest pains and a numb right leg and now basically no sleep before starting it all again . 

Colonoscopies really aren’t easy .  

People think it’s just a few laxatives and you’re away . I honestly wish it were that easy . I’m starving , exhausted and in a lot of pain . I can’t eat for at least another 8 hours (min) . I can’t sleep for another 10 to 12 hours . And my meds won’t start to work again , to take the edge off , for another 24 hours .  I’m shakey , anxious , feeling sick , and this is just the start of the day . 

I will get meds to calm me down once I am at the hospital , which do help a lot . But this really isn’t a walk in the park . It horrific .  Anyone who tells you different , really is lying . 

I am going to be telling my consultant today what I have been through and how I think it is unfair that people are up all night on moviprep .  Especially those with mental health conditions . No sleep makes everything a million times worse . 

I really can’t wait to get today over with .

Going for a colonoscopy .

Tomorrow is the day I go for a colonoscopy .  I’m nervous as expected .  My anxiety is high and I feel weak . 

I’m anemic and have to starve myself for 24 hours . I also have eating problems . I struggle to eat more than one meal and I struggle to eat before 4pm . 

I had to have food before 1pm . I made scrambled eggs on white toast .  I can’t eat white bread but you aren’t allowed anything else . So had no choice . I’ve been feeling ill ever since . Shakes and feeling super sick . 

I started the prep (moviprep) at 7pm . It’s foul . Smells of lemon and tastes like salt . Making me feel even worse . 

I am drinking plenty of water because of it though . Which is a plus !

Honestly , think this is the worst part of the op though . The colonoscopy itself doesn’t last very long and it isn’t painful . Slightly uncomfortable but not painful . (I’ve had 2 before) .

It’s not even the not eating part that gets to me or the effects of moviprep , it’s the anemia and the shakes .  The feeling sick and not being able to do anything about it . 

Normally eating something sugary helps , but I can’t touch anything now until after my colonoscopy at 2pm tomorrow .

I keep thinking that it’s worth it .  To see what’s going on inside . But the shakes really make me think otherwise .  

The bonus of it all for me though , is that I get a Costa after it all haha . I have warned my parents – as they’re taking me – that we will be sitting in there eating and drinking ! I swear I’m addicted ….

Well , that’s my little update for now . I will let you know how it all goes tomorrow , and how amazing the Costa was πŸ˜›