Anxiety, Bullying, Bullying is not ok, Carmarthenshire, CBT, Chronic Pain, Coming together, Depression, Family, Friends, Future, Health, Heartbreak, Illness, Invisible illness, keaton, Keaton Jones, Love, Medication, Mental Illness, Panic attacks, Panic Disorder, Sad, South Wales, South West Wales, UK, Ulcerative Colitis, Uncategorized, Unfair

Bullying is not ok .

So like millions of others I have seen and read Keaton Jones’ story online . It started off on Twitter and then I saw it all over social media . I felt bad for the kid . Having been bullied for many years in school myself and finding the video so relatable . I cried with the boy and really felt for him and his family .  

Sadly , it was all a ploy to raise money for his mother . 

Apparently, she is very racist and all she is interested in is money and not her son’s welfare . 

She used her son . That is not ok .

If anything to me she sounds like a bully . 

She used innocent people, including famous people . Those we look up to and respect, people children look up to ! E.g. Captain America and The Hulk ! Some of the kindest people I have followed online who genuinely wanted to help her son . Along with a massive list of other celebrities . She used them to raise money for herself . 

I thought I would add that last image in so people would understand a bit more of what a bully is .

They come in all shapes and sizes . And sadly age doesn’t matter . 

Now I’m going to get a bit personal because this all really got to me and for legit reasons . I’m not doing this to get attention , I am doing this to show the truth of what can happen when bullying happens in someone’s life . I know many have had it worse than me and are still having it worse than me . I respect that and in no way am I making out my life is the worst ever . I am just going to say about my experience and what it is still doing to me . And maybe , people will understand a bit better, how much bullying does impact someone’s life as a whole .
As a child, I was extremely quite. I wouldn’t say boo to a fly let alone anything else. Teachers would tell my parents how lovely I was and polite. How I would get involved in sing-a-longs and always help someone who didn’t know what to do in certain activities. I would go out of my way to help anyone. I wasn’t talkative like the rest though. I’d only speak when needed and always enjoyed playing one on one and not in a group. I was shy. 

This, I feel made me an easy target. Although it shouldn’t matter, it did. 

I enjoyed school until I was around 6 years old. I went everyday and the only thing I would moan about was getting up early to go in. But there was never any other problem. Until a few new boys started. They singled me out. And that’s where a heap load of trouble started. 

It started with name calling. Which mentally got to me. I started believing them, thinking I did something wrong. It became a slippery slope. The bullying started to get physical about a year later. Hair pulling at first, because I had a lot of curly hair. Then slapping, tripping me up and eventually punching. Teachers really tried but it never worked. No matter what they did it just made it worse. When I was around 8, I was taken to hospital with pains in my collarbone. It was oesteomalitis. Liquid arthritis in a rare place, my collarbone. I was in for weeks in pain. (This wasn’t caused by bullying, but I’ll get to that part now). It was agony. I had an operation but the liquid had moved to another part of my body. They found traces but nothing else in the bone, so they couldn’t remove it. I was warned it could come back anywhere in my body and I was to report all aches and pains just to be safe. After weeks in hospital I was told to take it easy and not to do sports or anything that would cause my collarbone to ache, as it was hollow and fragile. 

As usual, everyone found out. Including the bullies. This was yet another opportunity to single me out. And yes, as you can guess, they singled out that area and hurt me. 

Eventually, I healed. I caught a break for a few months from the bullies. Then the October that year , my Mamgu (Gran) passed away. We were extremely close . This completely broke me and to be honest, I’ve never gotten over it. I took a lot of time off school. I did try going back for a week but I couldn’t cope. Constant floods of tears when anyone mentioned anything I related with her. Especially flowers . (She was a gardener, she helped me control my anxiety through learning how to care for flowers) . 

It took me a long time to be able to face people. But I had to in the end, and once again, the bullies used that. They were so cruel. After that, I couldn’t cope. I refused to leave the house. We had child services calling out because they just thought I was a naughty child. 

As I stated, I was quiet, I didn’t even tell my parents half of what happened. They knew name calling was happening but nothing more. I hid my feelings well. 

This went on for years. I’d go to school some days just to shut people up. But most of the time I’d lock myself away. Claiming I was sick. I even went to the doctors on a weekly basis because my mother didn’t know what was wrong. 

Eventually, my GP clicked. She diagnosed me with anxiety and depression and said she thinks it all started around aged 6, when the bullying started. 

But of course, schools didn’t understand back then. So the preassure was still on. 

Now everyone feels sorry for the victim but no one thinks about the parents and the family around them. 

My family went through hell. There wasn’t any support for them. They were diagnosed with depression. The difference was, they were on medications that took the edge off. I was too young. Not that I like pills of any sort. But I needed help and so did my family. 

They were threatened with court. For me skipping so much school. They had me at home in fits of tears and anger because I just couldn’t talk about things. They had no one to turn to for help. They were just as lost as I was. 

Eventually, I went to secondary school .

My best friend went to a different one. I had to go where my brothers went. I hated it. The bullying got a lot worse and the school wasn’t interested. It got to a point that I was pushed down stairs and locked in lifts. It was more physical. I was getting mental abuse too. Being fat shamed and told I should kill myself because I was worthless. Needless to say, self harming started. I hated my life. I hated myself. What was the point in living when the world was cold and cruel ? 

My parents eventually found out. It’s kind of hard hiding self harm and constant hatred for yourself. Especially at 11 years old. 

They contacted the school. Had numerous meetings. Only to be told . And I quote. 

“It’s all in her head, she’s young and attentionseeking” .

My parents were told this by the headmaster of a secondary school . A fully grown adult . 

Eventually they got counsellors involved. I had 3 in the space of a year . All working with me . All said I had school phobia and anxiety and depression . But yet again, nothing was put in place by the school . 

Come the second year of secondary school I was spiralling. My parents decided to change schools. I was put with my best friend. I was happy and continued to be for about 6 months. But that soon changed when the bullies got involved. They found out about my past, saw me as an easy target . It went on for years with name calling . But I was ok . I was doing better as it wasn’t physical . I was still missing school but not as much . 

Until the fighting started . 

I was 14 . I got my first boyfriend, he went to the school opposite. I was happy and the bullies didn’t like it. They got jealous. At first they just started stirring but my boyfriend knew better and ignored it. Then they got physical with me and my best friend. I could take it myself but when I saw them hurt my best friend I lost it. I found out I had one hell of a temper and I was quite strong. I also found out that violence doesn’t solve anything. 

I got into more and more fights. I got detention. And the bullying never stopped. I started missing school a lot. My boyfriend left me. I spiralled again. 

It kept happening until GCSE’S.  Where I went from being a top student. Always getting A’s despite missing so much school. To failing my exams. I got 2 F’s and 2 U’s . 

I spiralled. Again. Although I loved the fact I never had to go to school again . I failed something I knew I was good at. All because of these bullies and the schools not helping me. I was let down. I let myself down. I let my family down. 

I took a year out to try and find myself . I worked in my local food store and I loved it at first. I kept myself to myself. Went in early and on time . Worked hard and came home. However, even at 16/17 bullies were around. One came out of the woodwork and again I spiralled. I left my job. 

I then decided to start collage . I was 18 that December . I did performing arts. I loved acting. It’s all I ever wanted to do. I don’t know if it was the right choice though. Some students enjoyed the drama and causing trouble. The teachers loved them and there wasn’t anything you could say against them. I became close to one tutor . He was amazing . He understood me. He became like a big brother. I worked hard thanks to him and he made me believe in myself again .  Life wasn’t perfect but it was getting better. 

I left performing arts after the first year. I finished with the highest grade. I just had enough. As much as I loved acting and it was the career I wanted to choose. I went onto do theatre lighting and sound technology . The tutor being the one I was close to . Life picked up . It was good . He showed me that I should believe in myself . I knew what I was doing . I was a good student. I worked hard. 

Again though, life came to a halt when I was diagnosed with Ulcerative Colitis. At first we didn’t know what it was. I was just extremely ill all the time. I couldn’t eat or drink . My lecturer did all he could and kept me on the course working from home on paper work . He checked in daily with me and offered my family support. 

Once I was diagnosed and started treatment I was back in college . It was great . I had to take it easy at first so I was on the desks and drawing up lighting plans . I helped with set design and costume . It was fantastic . 

I started dating . Wrong move .  It was a guy on the course. Of course , he wasn’t really interested and just wanted gossip . Which stupid me gave as I’m too open for my own good. He then broke up with me and started telling everyone my business . People started bullying again . I was an adult and they still wouldn’t stop . 

I started to go into myself. Eating on my own. Hiding in the hall where we worked, behind the blacks (curtains). My lecturer found out and decided he was going to eat lunch with me . He’d send me to get the lunch for us and coffee …. Always coffee haha . Then we’d sit and talk about work . He got me to hang out with one of my very close friends , she’s still here for me today . She looked after me through thick or thin . My lecturer helped me come out of my shell.  College became the best time of my life. I was learning to cope . I had friends around me all the time, and if they were off sick I had my lecturer. He encouraged me. I passed the course with the highest mark. I even learned extra because I finished early. I learnt how to pat test theatre lights 🙂 

I then took some time off as I was getting aches and pains in my spine. When I did performing arts I slipped in the dance studio and hurt my back . It turns out I have 3 broken discs but at this point , we didn’t know . 

So I went to work in many shops . I couldn’t seem to hold a job down. I developed a panic disorder. Employers don’t seem to understand what that means. So I’d have to leave so I could have breaks in between jobs . 

Eventually I went to university . Biggest mistake I made . I was around 25 . The oldest on my course . I did theatre lighting and design . The lighting tutor hated me because he hated my old tutor . The course as a whole I had already done in college . The group’s I had to work in weren’t pulling their weight and making me do all the work . Then when something went wrong they would blame me . 

I was told I was dyslexic and dyspraxic.  Which made sense . But that made me an easy target for those who would get angry and throw their toys out of the pram . 

I was on the course with a good friend of mine . He would give me a lift and work with me daily . But that didn’t change the way I felt .  I became very ill with aches and pains and no one knew why . People would call me lazy in uni when I couldn’t lift something .  My friend always helped and didn’t mind doing it for me but the comments from others really got to me . They used to make fun all the time . Sarcastic comments . All that childish crap . It really got me though and I started to spiral slowly .  In the end it got too much so I quit . I left and had to get a job . 

The job I was in was retail . It was money . Not my dream job , but money none the less . I worked 46 + hour weeks and I worked hard for 3 solid months. I even broke a bone on the side of my foot from a staff night out . I ploughed through the best I could . Until one day, I was serving an elderly couple, they were lovely . Nothing was wrong. But I remember collapsing and hitting my head on the concrete floor . I was knocked out for a few seconds and when I came around I was nauseous . So I went to the toilet where I was ill.  I was sent home . 

It turns out my body went into fight or flight . It chose flight and shut down . I was too much of a danger to myself to go back to work . 

I lived off my parents for a year until I was registered disabled . 

And trust me , it’s not easy . 

People seem to think it’s so easy to be disabled. I look ok so I must be fine . It’s hard . 

I’m now 29 . I have no job . I have a lot of debt . I’m exhausted daily and I’m always fighting myself . My dream went out the window years ago . I don’t have much . And all of this stems from being bullied .  It has destroyed my life . 

But despite that , I still smile . I’m still here fighting . I’m always here for anyone who needs me and I will continue to be . Because despite the crap I have been through and am still going through , I won’t let bullies win . 

I’m 29 and I still have to put up with bullying .  Just a matter of weeks ago 2 so called friends were name calling and spreading rumours about me . I cut them out . But I would be lying if I said it was easy . Because it’s not . It still gets to me . It still makes me feel like a bad person, although I know I haven’t done anything wrong . 
This is the after effect of bullying . This is what it starts . It doesn’t matter when it starts , as a kid , teen , adult . Bullying is not ok . It does destroy lives and it does hurt . 

It may seem funny to some . But it hurts others and it drains you of everything you have . 

This woman who used her son for money . Used his pain to get what she wants . She is a bully and this is going to have a knock on effect . In my eyes , it’s child abuse and something needs to be done . 

Bullying is no laughing matter . It needs to stop . People need to stand up and talk about it . They need to call the bullies out and something needs to be done . 

No one deserves to be bullied . No one !

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M-I-A

Apologies , these last few months I’ve been MIA .

A lot has happened . 

Starting off I’ve developed a food allergy again . I’m now extremely allergic to milk . Which is a bit of a pain as most foods contain milk . 

I’ve been veggie since I was 13 , so I’ve now had to go vegan . Not that I have anything against the vegan diet , it’s just difficult when you don’t know much about it and have no choice but to take it up . 

I was however a fake vegan , as I wasn’t fussy if food had egg in it . Until the last few weeks where I now also have an allergy to egg ! 

There is a plus side of this diet . As I mentioned in previous blogs , I was on all natural medications . I didn’t take the steroids my gastro gave me and researched natural alternatives instead . I was on cumin and CBD oil . 

I saw my gastro a few weeks ago and he can’t believe it . I’m in remission !! Although he was concerned about the “flare ups” . Until I mentioned my milk allergy . 

My gp has been refusing to send me for allergy tests and just said to eliminate the foods . However , as it’s so severe it can become life threatening , so my gastro has now demanded an allergy test be done . I’m still waiting for that . 

I’ve also lost 1 stone 4lbs in 3 months , without even trying to . This hasn’t happened in 8 years !! 

On top of it all , earlier this month I lost my Uncle . My Aunty found him dead in bed . He was fit and healthy as far as we all knew . Turns out all the arteries to the heart were clogged and he basically walked upstairs after having breakfast , sat down on the bed and died instantly . 

It’s been hell in all honesty . 

We are all taking it in turns to stay with my Aunty as she’s not well herself . 

We are also all still , very much in shock . 

My father more so as he was the first one there to do CPR . My Uncle was his best friend . He worked for about 20 mins before the first responders came , then took it in turns with them to keep going . He even still kept trying once the paramedics got there . So you can imagine what he must be going through 😦 

I did go to see my Uncle in the chapel of rest . First time I’ve ever seen someone like that . But it was peaceful . He looked like he was going to wake up any second , do his usual snort like he did so often in his chair , and go “Uhh I wasn’t sleeping” . If only 🖤

There is something that made us all a little happier , if you can be happy at all in this situation . Before he passed , he had the grandchildren down from London for a week . It was a trial to see if they would stay with them for a while so they could have little holidays in Wales . The grandchildren adored my Aunty and Uncle . 

Then the weekend before he passed , he had my Nieces and Nephew over for a party for my Aunty , she had recently turned 60 but they couldn’t make her original party so they held one just for them . Myself and family went too . It was fab ! My Uncle made sure they were full on good food and then spoiled them rotten , as he always did with children , cake and Ice cream with the chocolate mint wafers . YUM ! And not forgetting the crisps and pop ! 

My Uncle was a sucker when it came to kids . They seemed to bring out the child in him 🙂 He did the same for me when I was a kid too . 

So basically , we figured out , he had his goodbyes . Everything had fallen into place . It’s something we can take some comfort in . 

His funeral was a lovely send off . The church was full . People had so much to say about him , all good . My Aunty wanted to celebrate his life and that’s exactly what we did . 

The song she chose to play him out in the church was from Dirty Dancing . The Time Of My Life . 

https://youtu.be/WpmILPAcRQo

Because my Uncle loved to dance ! 

I’ll never forget him grabbing me at my engagement party and making me dance . I can’t dance at all so he put me on his feet , like you do with a child , and made me dance with him for a while . I only got up to go to the bar , and I ended up dancing at my party . But that’s the kind of man he was . He was a loving , fun , gentle man . You could always rely on him and nothing was ever too big . He’s helped me out so many times over the years , I can’t thank him enough for everything he has done . 

I’ve had a few tears , but not enough . I feel like I really need to cry and scream and blame someone . But I can’t .  I think it’s shock . Even writing this , I’m crying a bit but no where near as much as I need to . I just cannot believe I won’t be seeing him in this life again . It’s heart breaking . 

It’s safe to say , this world has lost a fantastic man , and life will never be the same again . 

I truly hate September .  Last year I lost 2 close friends and now this year my Uncle . 

These last 7 years have been hell for my family , and I’m sick and tired of life always taking from us . 

Next year , I’m 30 . I’m not sitting back waiting for something else to happen , I’m grabbing 2018 by the balls and I’m living . Because one this I have learnt the hard way is , life is cruel and it’s selfish . It takes and takes and will drain you of everything if you let it . It’s taken enough from me now , it’s my turn to take something back . 

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Appologies but please bare with ….

I’m sorry for the lack of blog posts . This will change as soon as I feel right . 
I have been through one hell of a lot recently and the last week and a half has changed my life . 

I have lost 2 amazing and very special friends this week . Their funerals are coming up and my head really isn’t in the right place . 

It has hit me like a ton of bricks and I honestly don’t know what to do with myself  . 

I have a lot to update you all on and I promise I will do this . I just need some time to get my head together and to say goodbye to the amazing people who have left earth too soon . 
Thank you all for being patient with me . 

Much love xoxo 

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Appologies

I know I haven’t been great with my blogs lately . A lot has been happening and my mind is boggled . 

However, once I get a chance to sit down, I will be blogging like crazy . 

I have a lot to say and update you all with . 
So appologies for the lack of blogs , but I promise I will get on it asap 🙂 

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New medication

For the last 9 days I have been on Gabapentin 300mgs three times a day.
So far, so good .
They’re helping the pain from my crushed disc . Easing the pain in my hips and knees too . Although the pain hasn’t completely gone , it is way more manageable now .

I am feeling really good on them .
The first three days were odd. I was getting hyper after the third pill . So hyper I was awake at 1am painting…. Really not like me .
But now it’s all settled .
I’m sleeping far better …. Although I still wake with panic attacks , it’s not as often .
I have more energy ! Although come 8pm I start feeling tired , throughout the day, I feel amazing .

I’m honestly waiting for a drop / come down , but also enjoying it whilst it lasts  .

My anxiety and depression is low 😀
I still get dips and I’m not 100% but I’m better than I was .
I wish they had started me on these meds years ago !

Eventually, the doctor wants me on 900mgs eight times a day .
Now , I’m wary. Everytime I have gone on a high dose of medication, it has sent me back a thousand and one steps. 
Granted, I haven’t been on meds that have worked this well , but I’m still wary over it .
And it’s not like I can just stop these meds . It’s all gradual and counter medication can be needed , and this type of pain relief is for life too .

So I’ve decided I will keep track of my day to day lifestyle on these meds . Grade myself out of 10 . 0 being crap and 10 being amazing !
That way , if I do up the meds and I start getting worse , the doctor can read my notes and see how and when they effect me .

But for now , I am enjoying this energy surge and happy feelings and just going with the flow .

I would recommend this medication to anyone who suffers with chronic pain !
Although , I can see why people get addicted to it ….

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Update on my physical health

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After 9 years of trying to get to where I am today . I saw the Neuro last Tuesday .
After going through all of my MRI scans , even the ones they claimed they lost about 3 years ago .

We finally saw my bulging disc . It’s totally gone.  In the centre where there is supposed to be white stuff (as he explained) . Mine is all black and crushed . Which has been caused through an accident many years ago ….. 9 years to be exact and the accident was in college , falling on a wooden floor from running around in socks in an acting class …..

So we have a diagnosis there .
However , they want to leave an operation for as long as possible as I’m young .
They want to get me on pain relief and regular check ups every 4 months to make sure the disc doesn’t bulge out anymore and lean on my nerves .
At the moment , there is a little space which they’re happy with . So long as it doesn’t move outwards anymore .

One thing they did confirm for me though is that my hip and knee pain have nothing to do with my spine .
I need to get hold of my GP and demand further tests for those .
I am currently having pain relief for my right hip (it’s an experiment to see if it helps) . Cortisone injections . I’ve had 2 in my right hip and they have helped a lot . However, my left leg is extremely painful . Today is one of those days .

The Neuro also confirmed my back ache at the top of my spine has nothing to do with the disc either . I have very weak bones and joints through my Ulcerative Colitis.  Which will also need pain relief . But again that is up to my GP to sort .

I am hoping to see my GP next week to sort this out .
I am relieved that they want to wait before an operation . That is a plus . But at the same time , it would help a lot of my pain .

In the mean time I have been told to walk . Military position and walk as far as I can . It should help the disc pain a little . So my furbabies will love this …. More walkies !!

I will update as soon as I know any more .
I’m not letting this get on top of me .
I have decided to keep a pain diary and mark 1-10 pain wise with diagrams as of where the pain is .
So I can show my doctors and consultants .
But I am trying to stay positive .
My furbabies are helping me with that (as I have spoken about in an earlier blog) 😄

So this is my little update on my health .
I will post about what happens next when I know .
I will also keep you all updated on pain relief etc .

Thanks for reading .

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Anxiety and depression with furbabies update

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Just a little update on how I’m getting along with my furbabies .

We have had Stan and Oscar for a little over 2 months now .
It’s incredible what they do on a daily basis without even knowing it .
By them just being their playful (and naughty) selves , they have majorly made my panic attacks better .
I’ve gone from having a panic attack on a daily basis to having 3 in the last 2 months .

I still wake up every night having my “normal” panic attacks from sleeping . But throughout the days I feel a lot better .
I’ve lost a stone and a half in weight . I’m eating better and healthier . I’m happy .

I am exhausted , which is natural when you’re a sufferer . Doing things on a daily basis is a chour still . But I’m smiling more when doing things .
I’m out more and walking with my parents or partner .
I still can’t walk far , I have to sit down regularly and I am in a lot of pain when I’m home . But that’s because I have weak bones and a bulging disc . 
But I’ll explain that in another post .

So what do my furbabies help me do ?

– They get me up in the mornings . Rather than the afternoons .

– They help me get exercise in a small way. It’s better than zero .

– They help me focus on the present . What’s happening now . Not what could happen or what has happened . Not what I want that everyone else has . I’m focussed on today and what we are all going to do .

– I attempt to make plans . Where as before I couldn’t make any . I still struggle as my health is unpredictable, but I’m trying . Which is a major step .

– I’m focusing on the positive . I may need a spine operation , at the moment they’re monitoring me and getting me pain relief as I’m young . But the option of an operation is still open . However , I’m not scared . I know it would help me do more and feel better . If this operation came about soon, I would plan more with my furbabies and give them a really really good life of being out daily in new places . I have created a positive out of a negative .

– They make me laugh . Even on the days I feel like crying because I’m in pain . They cuddle me and always do something silly . They know when I’m going through a rough day . That may sound silly to people who don’t have a dog . But seriously , they know.  They can read you better than you can read yourself and it’s a godsend .

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I honestly can’t say a bad word about them . They’re busy Bee’s , but they’re puppies .
They’re my lifeline right now and they’re the best decision we have ever made 🙂

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