Ulcerative Colitis and Weight Gain .

I have to state I am not a Doctor of any kind , but this is a recent subject I have found myself researching after a recent experience with a Gastro . 

It wasn’t a pleasant one .

To cut a long story short , I was told that I was obese (like I didn’t know) . But to add insult to injury , I was also told I shouldn’t be obese as “Ulcerative Colitis makes you lose weight , not put it on” .

Now I’ve struggled with my weight for the last 8 years , since being diagnosed with UC . I’ve been on liquid diets , teatox , raw vegan diets , you name it , I’ve done it . Including the gym 5 days a week for 2-3 hours a day ! I can lose a stone , but nothing more .

I explained all of this to the Gastro . He laughed . Told me to get running . So I went through all of my health issues and what the Neuro has advised me to do . He didn’t know what to say . Except that I need to stop over eating . 

That part got to me big style ! I eat a max of 800 calories a day . I always have because I can’t stomach anything more .

Needless to say he didn’t believe me and told me I need to be on 500 calories a day to see any benefit . The cheek of it ! 

So I’ve gone into , let’s say a stubborn mood since . 

As I am seeing him again on the 13th I want proof of what I consume etc a day . So I’m keeping a log of my caffeine , water and food intake . Along with my steps , sleep pattern , heart rate , blood pressure and glucose levels . 

I have also done some research . It took me a while to find it via Google so I decided to take a better approach . 

Like many sufferers , I join groups and forums . So instead of reading I asked the question directly and went on to explain my experience .  

So many people came forward with their experience with weight gain and UC . 

The way my gastro had explained it to me , it made me think I was the only obese person with UC ! But I’m not . 

Over the years I have been on numerous medications . I have also been on steroids . All of which have made myself and countless others gain weight . 

As you know , gaining weight is easy , the hard part is losing it . People of all ages have answered my question and they are all struggling with the same thing . 

Whilst UC does make you lose weight , the medications make you gain and gain . I stopped mine over a year ago and went natural . I now refuse to put any toxins / chemicals in my body . Although I can’t lose the weight …. yet , I am hopeful that I will . It does take time for the body to reset itself and start getting it’s rhythm back , I’m just hoping that’s soon so I can prove this ass of a doctor wrong !


I thought I would share this experience with you as I found it difficult to come across what I needed . I hope this helps a little for anyone in the same dilemma as me . 

If you want more information or just need to chat to another UC sufferer , please feel free to leave comments below .

Chronic illness and fatigue

If you suffer with chronic illness , you’ll know that owning an alarm clock is a waste of money . You’ll hear it going off , but it doesn’t necessarily mean you’ll wake up . 

You’ll also be very familiar with the snide remarks / “jokes” people make .

“I wish I had time to take a nap” .

“Everyone gets tired , you just have to push through it” .

Having chronic illnesses almost always means you don’t have a good , if any , sleep pattern . 

The usual 8 hours sleep everyone gets seems like heaven and you always hope that one day , you will get that glorious , golden 8 hours , of uninterrupted sleep for yourself . 

The thing is , no one truly understands it until they go through it themselves . I didn’t .  I’m 28 and 11 years ago I was your ‘normal’ , every day person who could get up and go . Party all night and work all day . Get a few hours sleep and I was raring to go again ! I never understood how people could be so slow or always sleeping or never go out . I loved life and nothing could hold me back . 

Then , I had my accident and life spiralled . I then started to understand why people couldn’t do things .

Normal everyday life is a chore . 

For me , I suffer with broken discs in my lower spine , hip and knee problems . (Along with so much more) . So from the minute I get up , I’m struggling . 

Getting dressed used to take minutes , now it’s 30 minutes or more . 

Bending , hurts . 

Getting up , hurts . 

Sitting down , hurts . 

I feel like I’m stuck in a 90 year olds body . 

The struggle is real – as they say . 

By the time I get downstairs I’m ready to go back to bed .

Making coffee is a chore but it’s so needed . Caffeine is about the only thing my body runs on these days . 

My normal routine …. I say routine , it’s more than likely that I …. Get up around 11am . Dressed and downstairs by 12pm . I have coffee by 12:15pm and then I sit down . I’ll try and get stuff done but every 15 minutes I need to sit . 

Come 5:30pm I . Am . Dropping . I normally go for a nap for a minimum of an hour and a half . It takes me between 30 and 45 minutes to settle and drop off . Then I’ll be waking up every 20 – 30 minutes . It takes around 10 minutes for me to drop back off to sleep . So I never get a full rest . This is why I can’t ‘power nap’ .

Then after my nap I’m normally awake until 4/5 am . I’ll sleep until 8am , waking every 20 – 30 minutes . Then I’ll be awake for an hour (8-9am) Then I usually nod off again until 11am . Always waking every 20-30 minutes . This is if I’m lucky to get sleep . Some nights , I’m awake all night . It all depends on the pain and if I can lie down etc . 

And I know I’m not the only one who suffers like this . My father is exactly the same as me . So I know I’m not alone when I say , it really is tough . 

So to have the usual sly remarks made , it’s no surprise when people get short with you .  

When you are basically called lazy . Oh how I wish it was true . Physical and mental exhaustion is no joke . 

Or when you’re told it’s just a bad day . Or you’ll get over it …. Please , show us how ? Teach us how chronic pain can be cured with a flick of a switch . 

And when people make fun of you . Now this is where people can get really petty . When they see you struggling and just think it’s hilarious and that you’re doing it for attention . I would absolutely love to watch you walk in our shoes for just one day . 

So please , be kind people . It takes zero effort to just be nice to someone . To try and understand it . I mean , you wouldn’t like someone to make a joke about your bad day would you ? So why would you do it to others ? 

Think before you judge . 

Chronic illness is tough . I have tried a lot of medication to help me , none of which have . It can take years to find the right thing , so far for me it’s taken 10 years , and I’m still trying . 

I’m now looking into natural pain relief and foods that help . 

I had a plan.

At age 16 all I wanted to do was act . 

I adored theatre and being on stage . I had been acting for over 10 years and had lead roles in everything . 

All the way through school I was an A* student at acting and script writing .

So when I went to college , it was to no surprise that I chose Performing arts . However , whilst on the course , I realised I had a passion for another side of it . I fell in love with theatre lighting, sound and set design . 

I finished my course after a year with a distinction* (highest grade) and then decided to go back and join the theatre lighting and design course . 

I thrived . It became my way of life . 

Although I was battling with my UC . My lecturer worked around it . He was so understanding and sent work home for me on days I couldn’t make it in . Then when I went in I did the practical side . 

I passed the course again , after 2 years , with the highest grade possible . I got extra grades too because I finished the work early . So I also got a qualification in PAT testing the lights and health and safety . 

It was amazing . Exactly what I wanted to do . 

I took a little break from studying and went to work in retail until I figured out if I wanted to go on to university or straight into the theatre lighting world .

I decided university would be amazing as I could stretch out into other fields too . 

But that’s when my body started giving up on me .

I had an accident whilst doing performing arts which has lead to me having broken discs in my lower spine . I have hip and knee problems too . I had to quit Uni 3 weeks before finishing the year . I was absolutely gutted . But I couldn’t cope with the pain and no sleep . 

I thought it would be a temporary thing . That I could go back and redo the year . But my body is failing me . 

I feel lost . 

I had my whole life career planned out . I knew exactly what I wanted . I set things in motion to get it . But that one slip in the dance studio has destroyed my dreams . 

The pain is getting worse . There’s no sign of pain clinic , physio or hydro therapy . 

I’ve seen physio once in the surgery just to try and get the ball rolling but the positions they have given me just hurt . 

I’m not sleeping for more than 4 hours a night and it’s a broken sleep . 

I’m constantly worried about my future . 

Being 28 and needing a walking stick with a seat on just to go places , is not how I planned for my life to turn out . 

My only interest has ever been theatre . I don’t find any happiness in anything else . But the fast paced environment isn’t for me anymore .

I really am stuck . 

I can’t work 9-5 because I don’t sleep well , so I drop when I drop . 

I’m unreliable because of that . 

Everyday simple tasks are a challenge for me . And my memory is all kaput because of the lack of sleep and pain . I can’t be trusted to boil an egg without walking off from the stove . 

I really do wish life was different right now . If only I didn’t have that fall , I would be on the track to my dream job . But I guess life had a different idea for me . A different path ? 

I wish it was possible to see the future , because right now , I’m stuck battling with my pains and emotions and it’s not fun and games . 


I’m sorry for a depressing post . But I’ve always said I will post the pros and cons of my life . Today just so happens to be a bad one . But I know , it’s only a day πŸ™‚ 

The past 2 weeks .

A lot has happened the past 2 weeks . 

Back in December I was told I was in remission with my Ulcerative Colitis . Which was amazing news for me . Even though I was getting small fare ups , I could cope . 

After 8 years of suffering I thought I was finally getting somewhere . 

Until ….

Last week I saw a doctor at my surgery . He went through my notes . I went down about hip and knees pains . 

He told me I had nothing wrong with my spine . Even though neuro says I have broken and bulging discs . He said everyone does . He also said I have ibs but didn’t test for it . He gave me meds for that . Then asked if I take anti inflammatories . To which I said no because of my UC . He went on to say that I can now as I’m in remission . 

He then said he will give me pain killers for me knees and hips and see how we go . 

That was last Tuesday . 

Five days later I was in extreme pain . When I read up about the meds , I found they were NSAIDS (Non steroid anti inflammatory drugs) . 

I stopped them immediately and prayed the pain would go away . 

Come Monday I was rushed to A&E . In pain and bleeding , a lot . 

Turns out I was right . I am not allowed these meds and the doctor in no way should have prescribed them . Even when in remission . UC is a life long condition . It never goes away , just lies dormant for a while . 

Now I have been referred back to gastro . Awaiting further tests to see what damage it has caused . 

Speaking with a doctor in A&E she confirmed that it can progress into Crohns in circumstances like mine . The worst case scenario is also bowel cancer depending how bad everything is . It’s doubtful but can’t be ruled out until I see gastro . 

However , this means my anxiety is at an all time high again . Panic attacks are back due to stress . All because a doctor didn’t do his job right . 

I am fuming to say the least . 

I feel like it’s one step forward and twenty back . 

I have really been struggling with all of this . Mentally and physically . 

Thankfully I have my family to help me through it . Without them I wouldn’t be able to cope . 

They have all been my rocks πŸ’œπŸ’œ

Family is definitely everything in times like these . 

They have helped me keep going and also encouraged me to take up hobbies to take my mind off it all . 

Along with raising money for Many Tears Animal Rescue , I have also decided to try out making glitter glasses πŸ™‚ 

They’re a lot of fun on my good days πŸ™‚ Although , I have quite a few now haha .

They help me relax and are super easy to make too πŸ™‚ 

My aim this year is to save more money . So making gifts is the way forward . Something personal and made with love and something that keeps my mind active and not ticking over on the bad stuff . 

I highly recommend it to anyone who loves being creative . It’s a nice pass time . Along with spending time with loved ones πŸ™‚ 


Fresh air .

The last few days I’ve been feeling really unwell . My sleep pattern is off , my heads been painful , I’ve even been feeling sick . Along with my normal aches and pains . So today I thought “stuff it” . 

I dropped everything , grabbed the boys and went out for a walk with my Dad . 

We are both disabled so there are constant stops etc but we needed to get out . 

Best decision ever ! 

We went on a walk called ‘The Cratch’ . It’s a lovely, quiet walk , out of the way , by the river in Kidwelly . There aren’t vary many people down there and the views are stunning ! 


I never get out because of my health , but I’m glad I did today . 

It was chilly but we wrapped up . Including the furkids . 

It’s not a long walk but it took us around an hour and a half . 

My head cleared instantly ! All of my symptoms eased and my mood lifted . It was a beautiful day . 

We met a lovely lady who’s recently moved to Llanelli from Manchester . She gave the furkids some treats and they played with her furkid . It was so nice getting to know them and chatting about our love of animals . 

We truly live in a beautiful place . It may be a small town , but Kidwelly has some lovely walks . 

I think my next purchase is going to be a walking stick which has a seat . I really need to go on more walks and I know I can’t walk very far unaided , so I think it will be a practical purchase . It also gives me something to look forward to . 

I may look into some other nice walks within driving distance , and take the furkids with me to explore them .

If you have the “New Years Blues” like me , I really recommend going on a walk somewhere . The fresh air has really helped me a lot . And for once , I am in bed before 6am . 

Good riddance 2016

Thank God for that . 2016 is over . 

Not that I’m expecting 2017 to be my year or anything . But last year was filled with so much death . 

It started in June 2015 with my partners Gran and then my dog . And then 2016 hit and so many famous people started dropping . Over 80 celebrity deaths . Most being my idols , especially Carrie Fisher , that one really got to me at the end of the year . 

Not to mention my friends who passed away suddenly, both aged 28 .

I normally love Christmas and am like a massive child . But this year, it didn’t seem right . 

All my Dec’s went up . Time spent with family . Music , alcohol , cake etc . But I couldn’t help but feel this massive void . 2016 felt like it left me a shell . Emotionally, I had been so up and down that I think I was exhausted come the end . 

Don’t get me wrong , I appreciate all the amazing gifts and time spent with loved ones . I was truly spoiled again this year . I am just emotionally exhausted .

That’s one thing I can say though , I have slept through the holidays . Been going to bed super late and staying in bed to catch up on sleep too . 

I didn’t celebrate 2017 . I had tea in my pajamas and sat and watched TV with Rob all night . 

One thing I can say though . I am happy 2016 is over . I am ready to move forward from all of that rubbish . It didn’t make me stronger , it beat me black and blue . But it made me thankful for the time I have been on this earth and for the time I have left . Be it a day , year or seventy years . I am thankful . 

So with that said , thank you 2016 and goodbye . Please 2017 , do not be a copy cat !