Chronic illness and fatigue

If you suffer with chronic illness , you’ll know that owning an alarm clock is a waste of money . You’ll hear it going off , but it doesn’t necessarily mean you’ll wake up . 

You’ll also be very familiar with the snide remarks / “jokes” people make .

“I wish I had time to take a nap” .

“Everyone gets tired , you just have to push through it” .

Having chronic illnesses almost always means you don’t have a good , if any , sleep pattern . 

The usual 8 hours sleep everyone gets seems like heaven and you always hope that one day , you will get that glorious , golden 8 hours , of uninterrupted sleep for yourself . 

The thing is , no one truly understands it until they go through it themselves . I didn’t .  I’m 28 and 11 years ago I was your ‘normal’ , every day person who could get up and go . Party all night and work all day . Get a few hours sleep and I was raring to go again ! I never understood how people could be so slow or always sleeping or never go out . I loved life and nothing could hold me back . 

Then , I had my accident and life spiralled . I then started to understand why people couldn’t do things .

Normal everyday life is a chore . 

For me , I suffer with broken discs in my lower spine , hip and knee problems . (Along with so much more) . So from the minute I get up , I’m struggling . 

Getting dressed used to take minutes , now it’s 30 minutes or more . 

Bending , hurts . 

Getting up , hurts . 

Sitting down , hurts . 

I feel like I’m stuck in a 90 year olds body . 

The struggle is real – as they say . 

By the time I get downstairs I’m ready to go back to bed .

Making coffee is a chore but it’s so needed . Caffeine is about the only thing my body runs on these days . 

My normal routine …. I say routine , it’s more than likely that I …. Get up around 11am . Dressed and downstairs by 12pm . I have coffee by 12:15pm and then I sit down . I’ll try and get stuff done but every 15 minutes I need to sit . 

Come 5:30pm I . Am . Dropping . I normally go for a nap for a minimum of an hour and a half . It takes me between 30 and 45 minutes to settle and drop off . Then I’ll be waking up every 20 – 30 minutes . It takes around 10 minutes for me to drop back off to sleep . So I never get a full rest . This is why I can’t ‘power nap’ .

Then after my nap I’m normally awake until 4/5 am . I’ll sleep until 8am , waking every 20 – 30 minutes . Then I’ll be awake for an hour (8-9am) Then I usually nod off again until 11am . Always waking every 20-30 minutes . This is if I’m lucky to get sleep . Some nights , I’m awake all night . It all depends on the pain and if I can lie down etc . 

And I know I’m not the only one who suffers like this . My father is exactly the same as me . So I know I’m not alone when I say , it really is tough . 

So to have the usual sly remarks made , it’s no surprise when people get short with you .  

When you are basically called lazy . Oh how I wish it was true . Physical and mental exhaustion is no joke . 

Or when you’re told it’s just a bad day . Or you’ll get over it …. Please , show us how ? Teach us how chronic pain can be cured with a flick of a switch . 

And when people make fun of you . Now this is where people can get really petty . When they see you struggling and just think it’s hilarious and that you’re doing it for attention . I would absolutely love to watch you walk in our shoes for just one day . 

So please , be kind people . It takes zero effort to just be nice to someone . To try and understand it . I mean , you wouldn’t like someone to make a joke about your bad day would you ? So why would you do it to others ? 

Think before you judge . 

Chronic illness is tough . I have tried a lot of medication to help me , none of which have . It can take years to find the right thing , so far for me it’s taken 10 years , and I’m still trying . 

I’m now looking into natural pain relief and foods that help . 

Kindness .

I have been absent due to many reasons lately , to which I apologise . 

However , one of the reasons is that I’m busy . 

I’ve been going through one hell of a lot with my health and I found I started to spiral with my mental health , so I decided to do something positive . 

If you have read my blogs in the past , you would know I have a charity which I hold close to my heart . 

Many Tears Animal Rescue . 

They have been struggling lately for money due to their food supplier not being able to donate anymore . So all of their money is being stretched out over many things . One major thing being life saving operations . 

They have asked for help on their Facebook page :  https://www.facebook.com/manytearsrescue/

So I have decided to start up a Facebook page of my own , with raffles to help get some pennies for them . 

https://www.facebook.com/groups/395115930823972/

On the page is the go fund me link which I also set up for them πŸ™‚ 

https://www.gofundme.com/wp2arwjs-help-many-tears-animal-rescue

Every penny I raise will go to them . 

If you enter the raffles and live in the UK, I will post the prize to you (if you don’t live near) and the money will come out of my own pocket πŸ™‚ 

Doing something good has really helped me cope better with what I am going through . 

Since losing Ellie back in 2015 , I have chosen to help this charity because of their amazing work . They do so much for the animals . All staff work on minimum wage and never ask for a penny more . They even put their hard earned cash back in to the rescue to help the animals . Cleaning products etc . 


If you could please take some time to have a look , donate / share either this blog , the links or just the go fund me page . I would be extremely great-full . 


Thank you all so far for your support πŸ’œπŸ’œ

Good riddance 2016

Thank God for that . 2016 is over . 

Not that I’m expecting 2017 to be my year or anything . But last year was filled with so much death . 

It started in June 2015 with my partners Gran and then my dog . And then 2016 hit and so many famous people started dropping . Over 80 celebrity deaths . Most being my idols , especially Carrie Fisher , that one really got to me at the end of the year . 

Not to mention my friends who passed away suddenly, both aged 28 .

I normally love Christmas and am like a massive child . But this year, it didn’t seem right . 

All my Dec’s went up . Time spent with family . Music , alcohol , cake etc . But I couldn’t help but feel this massive void . 2016 felt like it left me a shell . Emotionally, I had been so up and down that I think I was exhausted come the end . 

Don’t get me wrong , I appreciate all the amazing gifts and time spent with loved ones . I was truly spoiled again this year . I am just emotionally exhausted .

That’s one thing I can say though , I have slept through the holidays . Been going to bed super late and staying in bed to catch up on sleep too . 

I didn’t celebrate 2017 . I had tea in my pajamas and sat and watched TV with Rob all night . 

One thing I can say though . I am happy 2016 is over . I am ready to move forward from all of that rubbish . It didn’t make me stronger , it beat me black and blue . But it made me thankful for the time I have been on this earth and for the time I have left . Be it a day , year or seventy years . I am thankful . 

So with that said , thank you 2016 and goodbye . Please 2017 , do not be a copy cat ! 

The waiting game….

Had my colonoscopy on Monday . 

Ouch!!

I’m not going to lie , it was horrific . 

I had to have gas and air and pre med . I was still screaming in pain . It really really hurt . 

Naturally I am pale , but I came out of there looking like a ghost . I was white !! 

They couldn’t find a vein to put my canola in .  When they did it spurted everywhere .  Eventually my consultant got it in one go . 

I somehow convinced my consultant that I’m rich because we were all talking tattoos . He asked what I did for a living and I said nothing . To which he smiled and I didn’t correct him haha . It’s not a bad thing right ? It’s better than him thinking I’m a bum or something haha . 

I brought up about the laxatives though . They all agreed that something needs of be done about it . They have had loads of complaints !!

Back to the op . My Ulcerative Colitis wasn’t flared up which was good , but they found something they didn’t like so they’ve taken 10 biopsies and I should have the results in 1 to 2 weeks with a follow up app in 3 to 4 weeks .  I can phone to get the results before the app though , which is great . I hate waiting . 

The things they found could be anything though . From food intolerance to the major stuff I don’t want to think about . 

As I feel unwell daily it could be anything . Although , I do want tests done to see what I am allergic to as every time I eat my stomach hurts . It stretches and I have stretch marks because of it . So hopefully the results will confirm that and I can get referred for further tests and sort that out . Here’s hoping anyways . 
I hope I haven’t scared anyone with these blogs though . I have had 2 colonoscopies before this one and they didn’t hurt . They were uncomfortable but not painful . I don’t know what was different this time , but it was horrendous .  I highly recommend pain relief of all kinds haha . Although I did refuse the high end pain relief as I wanted to leave asap afterwards to see my friend who is in hospital .  I ended up missing the time slots though …. If I had known , I would have had all the pain relief going …. Not happy .  But I’m extremely glad I got it out of the way . 

Now all I have to do is get over the allergic reaction . lol . Yeah . My body has decided to be a jerk . We assume it’s a reaction to the meds . Although I am better tonight , I have been suffering with flu like symptoms . Shakes and feeling cold came first , then yesterday I was sneezing like crazy and my face was puffy , which only ever happens when I’m allergic to something . Today I’ve just felt like jelly . Wobbling all over the place . I’m also off food although I’m trying my best to eat . 

It really is worth it though πŸ™‚ At least in a few weeks I will know what is up with that area of my body and I can fix it . 

I will keep everyone updated .

Going for a colonoscopy .

Tomorrow is the day I go for a colonoscopy .  I’m nervous as expected .  My anxiety is high and I feel weak . 

I’m anemic and have to starve myself for 24 hours . I also have eating problems . I struggle to eat more than one meal and I struggle to eat before 4pm . 

I had to have food before 1pm . I made scrambled eggs on white toast .  I can’t eat white bread but you aren’t allowed anything else . So had no choice . I’ve been feeling ill ever since . Shakes and feeling super sick . 

I started the prep (moviprep) at 7pm . It’s foul . Smells of lemon and tastes like salt . Making me feel even worse . 

I am drinking plenty of water because of it though . Which is a plus !

Honestly , think this is the worst part of the op though . The colonoscopy itself doesn’t last very long and it isn’t painful . Slightly uncomfortable but not painful . (I’ve had 2 before) .

It’s not even the not eating part that gets to me or the effects of moviprep , it’s the anemia and the shakes .  The feeling sick and not being able to do anything about it . 

Normally eating something sugary helps , but I can’t touch anything now until after my colonoscopy at 2pm tomorrow .

I keep thinking that it’s worth it .  To see what’s going on inside . But the shakes really make me think otherwise .  

The bonus of it all for me though , is that I get a Costa after it all haha . I have warned my parents – as they’re taking me – that we will be sitting in there eating and drinking ! I swear I’m addicted ….

Well , that’s my little update for now . I will let you know how it all goes tomorrow , and how amazing the Costa was πŸ˜› 

Clean Food & Depression .

I know you’ve probably heard it all before .

“Eat healthy , fresh , lots of Veggies , it helps” .

Well I’ve tested this .
I used to eat a lot of frozen/ packaged meals . Easy meals . Not so much microwave but just quick cooking meals . So I thought I would change my diet a little to see if it’s true about food and depression .
I’ve cut out A LOT of high sugary foods .
I eat a lot more fresh , although I do love my Quorn frozen foods . So I haven’t completely cut them out .
For example , today’s meal is stew . Fresh Veggies, carrots , potatoes , onions etc and I’ve added Quorn chicken pieces to it .

I do have treats . I will have a bar of chocolate here and there . I haven’t gone completely insane …. Yet haha .

But I feel a lot better for this .
I’ve lost over a stone in 6 weeks .
Granted, walking the dogs has helped , but I have more energy to do this .
I feel less tired throughout the days . I don’t need to nap !!
I used to always go back to bed for a few hours and I didn’t have much of a sleeping pattern . Since eating better I now have one . I get up at 10:30am to see to the dogs and I don’t feel drained through it .

I’m not completely 100% healed or anything . I still get panic attacks in my sleep , which cause a broken sleep . But I’m able to get up and do things . Even if I am slow at doing things throughout the day , I’m not as bad as I used to be .
I used to get up at 12pm EARLIEST. I’d be back in bed by 4pm . Sleep until 7/8pm and then be up until 3am and it’ll all start all over again .
Now I feel better about myself.  My depression is still there but I can control it better .
I still stay up late but only until about 12am then I force myself into bed .
I may not sleep straight away but I am relaxed .

I find eating less sugar has helped stop some panic attacks throughout the day too .
I’m also not breaking out in spots as often .
And I’m actually tired at a normal time.
Strangely , my hair is healthier .
I have no idea if food does that to you, but it feels and looks great πŸ™‚

I’m not a chef . I don’t cook amazing meals . I can’t be trusted around a cooker as I walk off . So I use a slow cooker . I can leave the food to cook and not worry about it boiling over or burning .
It’s a life saver !!

Stew is my favourite meal to make as it’s so easy . It’s fresh and colourful and full of goodness .
It picks my spirits up on those cold , wet nights and it gives me the energy that I need .

I don’t know why I didn’t listen to people sooner .
I suppose it was just easier not to ?
But I’m glad I have now .
I’m still looking at ways to eat better . I’d love to shop at places which sell better foods . It would have to be online as I can’t go shopping yet due to my anxieties . But I’m trying πŸ™‚

I highly recommend trying this .
It doesn’t have to be boring . Stew doesn’t take long .
All Veggies don’t take long to cook .
Also, remember , dieting doesn’t have to mean cutting all the nice stuff out . It just means to have it in moderation . I love my chocolate and there’s no way I will give that up . But instead of having a bar a day , I look forward to my weekly treat . I work hard for it and it feels amazing !

A side note about food as well . Veggies can be bought frozen and it’s not cheating when they’re precut.  All the goodness stays in them πŸ™‚
However , it is always better to grow them yourself …. I will be looking into growing my own fruit and veg soon.

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