The past 2 weeks .

A lot has happened the past 2 weeks . 

Back in December I was told I was in remission with my Ulcerative Colitis . Which was amazing news for me . Even though I was getting small fare ups , I could cope . 

After 8 years of suffering I thought I was finally getting somewhere . 

Until ….

Last week I saw a doctor at my surgery . He went through my notes . I went down about hip and knees pains . 

He told me I had nothing wrong with my spine . Even though neuro says I have broken and bulging discs . He said everyone does . He also said I have ibs but didn’t test for it . He gave me meds for that . Then asked if I take anti inflammatories . To which I said no because of my UC . He went on to say that I can now as I’m in remission . 

He then said he will give me pain killers for me knees and hips and see how we go . 

That was last Tuesday . 

Five days later I was in extreme pain . When I read up about the meds , I found they were NSAIDS (Non steroid anti inflammatory drugs) . 

I stopped them immediately and prayed the pain would go away . 

Come Monday I was rushed to A&E . In pain and bleeding , a lot . 

Turns out I was right . I am not allowed these meds and the doctor in no way should have prescribed them . Even when in remission . UC is a life long condition . It never goes away , just lies dormant for a while . 

Now I have been referred back to gastro . Awaiting further tests to see what damage it has caused . 

Speaking with a doctor in A&E she confirmed that it can progress into Crohns in circumstances like mine . The worst case scenario is also bowel cancer depending how bad everything is . It’s doubtful but can’t be ruled out until I see gastro . 

However , this means my anxiety is at an all time high again . Panic attacks are back due to stress . All because a doctor didn’t do his job right . 

I am fuming to say the least . 

I feel like it’s one step forward and twenty back . 

I have really been struggling with all of this . Mentally and physically . 

Thankfully I have my family to help me through it . Without them I wouldn’t be able to cope . 

They have all been my rocks 💜💜

Family is definitely everything in times like these . 

They have helped me keep going and also encouraged me to take up hobbies to take my mind off it all . 

Along with raising money for Many Tears Animal Rescue , I have also decided to try out making glitter glasses 🙂 

They’re a lot of fun on my good days 🙂 Although , I have quite a few now haha .

They help me relax and are super easy to make too 🙂 

My aim this year is to save more money . So making gifts is the way forward . Something personal and made with love and something that keeps my mind active and not ticking over on the bad stuff . 

I highly recommend it to anyone who loves being creative . It’s a nice pass time . Along with spending time with loved ones 🙂 


The waiting game….

Had my colonoscopy on Monday . 

Ouch!!

I’m not going to lie , it was horrific . 

I had to have gas and air and pre med . I was still screaming in pain . It really really hurt . 

Naturally I am pale , but I came out of there looking like a ghost . I was white !! 

They couldn’t find a vein to put my canola in .  When they did it spurted everywhere .  Eventually my consultant got it in one go . 

I somehow convinced my consultant that I’m rich because we were all talking tattoos . He asked what I did for a living and I said nothing . To which he smiled and I didn’t correct him haha . It’s not a bad thing right ? It’s better than him thinking I’m a bum or something haha . 

I brought up about the laxatives though . They all agreed that something needs of be done about it . They have had loads of complaints !!

Back to the op . My Ulcerative Colitis wasn’t flared up which was good , but they found something they didn’t like so they’ve taken 10 biopsies and I should have the results in 1 to 2 weeks with a follow up app in 3 to 4 weeks .  I can phone to get the results before the app though , which is great . I hate waiting . 

The things they found could be anything though . From food intolerance to the major stuff I don’t want to think about . 

As I feel unwell daily it could be anything . Although , I do want tests done to see what I am allergic to as every time I eat my stomach hurts . It stretches and I have stretch marks because of it . So hopefully the results will confirm that and I can get referred for further tests and sort that out . Here’s hoping anyways . 
I hope I haven’t scared anyone with these blogs though . I have had 2 colonoscopies before this one and they didn’t hurt . They were uncomfortable but not painful . I don’t know what was different this time , but it was horrendous .  I highly recommend pain relief of all kinds haha . Although I did refuse the high end pain relief as I wanted to leave asap afterwards to see my friend who is in hospital .  I ended up missing the time slots though …. If I had known , I would have had all the pain relief going …. Not happy .  But I’m extremely glad I got it out of the way . 

Now all I have to do is get over the allergic reaction . lol . Yeah . My body has decided to be a jerk . We assume it’s a reaction to the meds . Although I am better tonight , I have been suffering with flu like symptoms . Shakes and feeling cold came first , then yesterday I was sneezing like crazy and my face was puffy , which only ever happens when I’m allergic to something . Today I’ve just felt like jelly . Wobbling all over the place . I’m also off food although I’m trying my best to eat . 

It really is worth it though 🙂 At least in a few weeks I will know what is up with that area of my body and I can fix it . 

I will keep everyone updated .

Colonoscopy day .

They lied . Moviprep doesn’t last for 2 hours max . It used to …. But I have had just under an hours sleep and now I’m up to start drinking some more . I am dropping !!

I spoke to a friend who has been through it lately , she was up all night too with it . So it’s not just me . Be prepared if you’re going through it . 

It says after an hour of your stomach settling , you can take any prescribed meds . I took mine at 11pm thinking I would be fine . Turns out I wasted meds . 

I’ve had chest pains and a numb right leg and now basically no sleep before starting it all again . 

Colonoscopies really aren’t easy .  

People think it’s just a few laxatives and you’re away . I honestly wish it were that easy . I’m starving , exhausted and in a lot of pain . I can’t eat for at least another 8 hours (min) . I can’t sleep for another 10 to 12 hours . And my meds won’t start to work again , to take the edge off , for another 24 hours .  I’m shakey , anxious , feeling sick , and this is just the start of the day . 

I will get meds to calm me down once I am at the hospital , which do help a lot . But this really isn’t a walk in the park . It horrific .  Anyone who tells you different , really is lying . 

I am going to be telling my consultant today what I have been through and how I think it is unfair that people are up all night on moviprep .  Especially those with mental health conditions . No sleep makes everything a million times worse . 

I really can’t wait to get today over with .

Going for a colonoscopy .

Tomorrow is the day I go for a colonoscopy .  I’m nervous as expected .  My anxiety is high and I feel weak . 

I’m anemic and have to starve myself for 24 hours . I also have eating problems . I struggle to eat more than one meal and I struggle to eat before 4pm . 

I had to have food before 1pm . I made scrambled eggs on white toast .  I can’t eat white bread but you aren’t allowed anything else . So had no choice . I’ve been feeling ill ever since . Shakes and feeling super sick . 

I started the prep (moviprep) at 7pm . It’s foul . Smells of lemon and tastes like salt . Making me feel even worse . 

I am drinking plenty of water because of it though . Which is a plus !

Honestly , think this is the worst part of the op though . The colonoscopy itself doesn’t last very long and it isn’t painful . Slightly uncomfortable but not painful . (I’ve had 2 before) .

It’s not even the not eating part that gets to me or the effects of moviprep , it’s the anemia and the shakes .  The feeling sick and not being able to do anything about it . 

Normally eating something sugary helps , but I can’t touch anything now until after my colonoscopy at 2pm tomorrow .

I keep thinking that it’s worth it .  To see what’s going on inside . But the shakes really make me think otherwise .  

The bonus of it all for me though , is that I get a Costa after it all haha . I have warned my parents – as they’re taking me – that we will be sitting in there eating and drinking ! I swear I’m addicted ….

Well , that’s my little update for now . I will let you know how it all goes tomorrow , and how amazing the Costa was 😛